Hi Everyone,
The side story of Aqa Aakhu’s experience at the Oasis of Hope has been diagnosing the cause of the hemolytic anemia and dehydration side effects of the treatment. When we arrived at the hospital the pre-treatment hemoglobin level was normal, about 12.3 grams. During this trip, with each treatment her hemoglobin count dropped about 2 grams and this is after the menadione was removed, the Vitamin C reduced and the ozone modified. Our primary oncologist there, Dr. Carbajal, came up with an excellent idea. He would test Aqa Aakhu’s blood with each element of the in-hospital treatment individually: Ozone, Perftec (blood oxygen carrier), Vit C and Menadione. Surprisingly, the menadione had very little effect. The ozone had even less. The vit C was the culprit. The hydrogen peroxide (H2O2) reaction caused by the high dose vitamin C was causing Aqa Aakhu’s red blood cells to break apart. Her red blood cells at least, seem to be low in catalase and/or glutathione making them unable to detoxify the H2O2 reaction.
This was proven later by one of the trademark effects of hemolysis, dark urine. Aqa Aakhu’s urine became as dark as Coca Cola everytime she received treatment at the Oasis of Hope. During the previous 2 trips there, her urine as completely dark by day 3 accompanied by vomiting, weakness and lack of appetite. With the modifications made to the treatment, her urine didn’t become completely dark until day 6 and 3 vit C treatments. She was eating, active and without nausea during the first 5 and a half days. Once Aqa Aakhu’s hemoglobin level reached 8 grams, we decided to discontinue the treatment while she was still feeling well. This was Monday morning, her last treatment was Sunday night. (It was after the second trip to Oasis that AqaAakhu passed out on the plane with a hemoglobin level of 4. She left NYU hospital after her hemoglobin level went over 7 grams, so we felt it was best to stay above that number.) Throughout all of this Aqa Aakhu was feeling well. We thought we had made all of the appropriate adjustments to limit the side effects and were planning to leave the hospital Monday night.
By late afternoon Monday Aqa Aakhu was beginning to feel weak and by the evening she was feeling nauseous. The doctors had left for the day so we decided to stay the night and see how she felt in the morning. I also ordered some IV protein for her to take that night. The IV protein had helped Aqa Aakhu tremendously during the first trip. By morning the nauseousness was gone and Aqa Aakhu felt stronger. However, we discovered that after being active for 20-30 minutes she would begin to feel light-headed. We had already made arrangements to stay in a hotel Tuesday night and were planning for her to rest prior to flying out of San Diego. Tuesday afternoon we left the hospital.
Now if you have never crossed the US/Mexico border coming back into the United States let me tell you about it. You get in a line of cars that moves at a snail’s pace and eventually becomes a ten lane or so wide field of hundreds of cars belching carbon monoxide (CO). Of course, carbon monoxide is an odorless, colorless gas. The housing code now requires landlords to install carbon monoxide detectors b/c it kills silently. Carbon monoxide enters the blood faster than oxygen. That’s part of what makes it so deadly. To top it all off, we were in the bus lane. There’s only one bus lane and it moves 10x slower that the car lanes. The border patrol agents require that everyone get off the bus so that they can personally search the vehicle, including the engine. Crossing the border like this you can spend 2-4 hours in line. You can imagine that someone with a decreased ability to carry oxygen in their blood, i.e., low hemoglobin level, would have a particularly hard time getting through this environment. There were other people in the van with us and I can tell you that everyone felt its effects. No one was talking. The line of buses was completely stopped, the van was in park and the driver was reading the newspaper. I was kind of slipping in and out of consciousness myself.
At that point Aqa Aakhu said she felt like she was going to pass out. It was GO TIME! Oh $%^#, here we go. how will I get her out of this line? will I have to carry her inside to get oxygen? will she last that long before she’s unconscious? I called her name and she was unresponsive. I looked at her face for the signs seen before when this happened on the plane. Fortunately, her eyes weren’t bulging and her teeth weren’t locked together. An extra 30 seconds. There was a wheelchair in the back of the van, belonged to one of the other patients (the ancestors provide). Pulled that out and lifted her out of the van into the chair. I wheeled her inside and got her on oxygen as fast as I could, soon she was fine. Long story short, we ended up in the Sharp Chula Vista hospital where she received fluids. Turned out that she was dehydrated the same as last time! I had believed the dehydration was caused by the vomiting, turns out that it was frequent urination as well. Even I was frequently urinating at the hospital so we missed that one as an additional source of dehydration. When she received the IV nutrition it was in saline so I thought both side effects were covered, red blood cell regeneration and dehydration. Apparently it wasn’t enough to deal with crossing the border at high noon.
We made it back to NYC safely, but the rest of the details will have to wait…
Ankhner/Khalfani Mothudi, signing off!